CEMFNJ Helpful Links
Let us help you connect the dots to better health!

Note: The following reference sites are “suggested resources.” They are provided as a means to help obtain relevant information and do not constitute an endorsement for any group’s content, products or services. It is sole the responsibility of the reader to decide whether a group is appropriate for his/her needs. Content should be used as a means of direction and not for medical advice, diagnosis or treatment.

New Jersey State Resources

Organizations Name	Organizations Website Link
American Academy of Pediatrics	www.aap.org
Healthy Children	http://www.healthychildren.org
Kennedy Krieger Institute	http://www.kennedykrieger.org/
National Center for Education in Maternal and Child Health	www.ncemch.org
Kids Together	www.kidstogether.org
National Collaborative on Workforce and Disability	www.ncwd-youth.info
The National Organization for Rare Disorders	http://rarediseases.org
Easter Seals Disability Services	www.easterseals.com
International Pediatric Chat	http://www.pedschat.org/index.php
American Lung Association	http://www.lung.org
Vaccinate Your Family	https://vaccinateyourfamily.org/
Partnership for Maternal & Child Health	http://partnershipmch.org

Disability and Catastrophic Illness

Organizations Name	Organizations Website Link
Muscular Dystrophy Family Foundation	www.mdff.org
United Cerebral Palsy	http://ucp.org
Arthritis Foundation	http://www.arthritis.org
Dystrophic Epidemolysis Bullosa Reserch Association of America	http://www.debra.org
Juvenile Diabetes Research Foundation	http://jdrf.org
Dana-Farber Cancer Institute	http://www.dana-farber.org/
The Children’s Hospital of Philadelphia	http://www.chop.edu/
Memorial Sloan Kettering	http://www.mskcc.org/pediatrics
MD Anderson	http://www.mdanderson.org/
USFC Benioff Children’s Hospital	http://www.ucsfbenioffchildrens.org/
Cincinnati Children’s	http://www.cincinnatichildrens.org/
Nemours Children’s Health System	http://www.nemours.org/
Children’s Hospital of Pittsburgh	https://www.chp.edu/
University of Chicago Medicine Comer Children's Hospital	http://www.uchicagokidshospital.org/
University of Iowa Children’s Hospital	http://www.uichildrens.org/
St. Jude Children’s Research Hospital	http://www.stjude.org/
C.S. Mott Children’s Hospital	http://www.mottchildren.org/
Johns Hopkins Children’s Center	http://www.hopkinschildrens.org/
Children’s National Health System	http://childrensnational.org/
Seattle Children’s	http://www.seattlechildrens.org
Children’s Specialized Hospital	http://www.childrens-specialized.org/
Epilepsy Foundation of New Jersey	www.efnj.com
New Jersey Center for Tourette Syndrome	www.njcts.org
National Hemophilia Foundation	http://www.hemophilia.org
American Heart Association	www.heart.org
Indiana Institute on Disability and Community	www.iidc.indiana.edu
Birth Defect Research for Children	www.birthdefects.org
Making Headway Foundation	www.makingheadway.org
The Catastrophic Illness in Children Relief Fund	www.state.nj.us/humanservices/cicrf
Catastrophic Illness in Children Relief Fund	www.mass.gov/eohhs/gov/departments/dph/programs/family-health/cicrf
Shriner’s Hospitals for Children	http://www.shrinershospitalsforchildren.org

Mental Health & Developmental Disabilities

Organizations Name	Organizations Website Link
PerformCare	www.performcarenj.org
New Jersey Children's Alliance	www.njcainc.org
Children's Aid and Family Services	https://cafsnj.org/
988 Lifeline	www.988lifeline.org
Society for the prevention of teen suicide	www.sptsusa.org
NJ Department of Health	www.nj.gov
American Foundation for Suicide Prevention	www.afsp.org
HelpGuide.org	www.helpguide.org
Kidshealth	www.kiidshealth.org
NJ211	https://nj211.org/mental-health
National Institute of Mental Health	www.nimh.nih.gov/
Mental Health First Aid	www.mentalhealthfirstaid.org//
Suicidal Crisis Support/ 988	www.iasp.info/suicidalthoughts/
American Academy of Child and Adolescent Psychiatry	www.aacap.org
United States Government Mental Health and Mental Health Problems Information	www.mentalhealth.gov
The National Alliance for Mental Illness	http://www.nami.org
Anxiety Disorders Association of America	www.adaa.org
Child & Adolescence Bipolar Disorder	https://www.nimh.nih.gov/health/publications/bipolar-disorder-in-children-and-teens
The National Association for Dually Diagnosed Mental illness and Intellectual Disabilities	https://thenadd.org/
The National Eating Disorders Association	www.nationaleatingdisorders.org
The Obsessive Compulsive Foundation	www.ocfoundation.org
Gateway to Post Traumatic Stress Disorder Information	https://www.gatewayfoundation.org/mental-health/trauma-and-ptsd
Mental Health America	www.nmha.org
Mental Health Association in New Jersey	www.mhanj.org
Mental Health Association of Maryland	www.mhamd.org
Mental Help Net	www.mentalhelp.net
National Federation of Families for Children’s Mental Health	http://www.ffcmh.org/
National Institute of Mental Health	www.nimh.nih.gov
National Center for Learning Disabilities	www.ncld.org
S.A.F.E. Alternatives	www.selfinjury.com
National Eating Disorder Association	www.nationaleatingdisorder.org
The New Jersey Self-Help Group Clearinghouse	http://www.njgroups.org/

Cancer Related Illness

Organizations Name	Organizations Website Link
American Cancer Society	www.cancer.org
American Childhood Cancer Organization	www.acco.org
Childhood Leukemia Foundation	www.clf4kids.org
On Top of Cancer	http://ontopofcancer.org/
Special Love	www.specialove.org
Brain Tumor Foundation for Children	https://cbtf.org/

Hair Loss

Organizations Name	Organizations Website Link
Locks of Love	https://locksoflove.org/
Wigs for Kids	www.wigsforkids.org
Pink Hearts Fund	www.pinkheartfunds.org
Alopecia Areata Foundation	http://www.naaf.org/

Autism

Organizations Name	Organizations Website Link
The Arc of New Jersey	http://www.arcnj.org/
Autism Society	www.autism-society.org
Autism Research Institute	https://autism.org/
First Signs	www.firstsigns.org
TEACCH Autism Program	www.teacch.com
Parents of Autistic Children	http://www.poac.net/
Autism Speaks	http://www.autismspeaks.org/

Parental Support

Organizations Name	Organizations Website Link
Stone’s Buddies	https://www.ochbuffalo.org/foundation/stones-buddies/
Parent Advocacy Coalition for Educational Rights	www.pacer.org
The Parents’ Place of Maryland	www.ppmd.org
Exceptional Parent Magazine	https://www.epmagazine.com/
Center for Parent Information and Resources	www.parentcenterhub.org
Kid’s Health	www.kidshealth.org
Parents Helping Parents	http://www.php.com/
Moms Rising	www.momsrising.org
PAVE(Partnership for Action, Voices of Empowerment)	www.wapave.org

Family support

Organizations Name	Organizations Website Link
Sibling Support Project	www.siblingsupport.org
Worries and Wonders	http://www.wondersandworries.org/
Family Voices	www.familyvoices.org
The Pinky Swear Foundation	www.pinkyswear.org
Starlight Children’s Foundation	www.starlight.org
Cancer Care	www.cancercare.org
Caring Bridge	www.caringbridge.org
Candlelighters Childhood Cancer Family Alliance	www.candle.org
Child Life Council	www.childlife.org

Child and Teenage support

Organizations Name	Organizations Website Link
Keeping Kids Connected	https://www.keepingkidsconnected.com/
Children's Cancer Network	www.childrenscancernetwork.org
PlanetCancer	http://myplanet.planetcancer.org/
Ulman Cancer Foundation for Young Adults	www.ulmanfund.org
TeenHealth	www.teenshealth.org

Patient Transportation Assistance

Organizations Name	Organizations Website Link
Angel Wheels To Healing	http://www.angelwheelsinc.com/
Corporate Angel Network	www.corpangelnetwork.org
Mercy Medical Airlift	www.mercymedical.org
Miracle Fights For Kids	www.miracleflights.org

Logging and Housing Assistance

Organizations Name	Organizations Website Link
Joe’s House	www.joeshouse.org
Angela’s House	www.angelashouse.org
Believe In Tomorrow Children’s Foundation	www.believeintomorrow.org
Ronald McDonald Houses	www.rmhc.org
Hosts for Hospitals	https://hostsforhospitals.org/

Financial and Other Assistance

Organizations Name	Organizations Website Link
Jonah and The Whale Foundation	www.jtwf.org
The Pediatric Angel Network	http://pediatricangelnetwork.com/_index.php
Andre Sobel River of Life Foundation	www.andreriveroflife.org
United HealthCare Children’s Foundation	www.uhccf.org
Mission4Maureen	https://mission4maureen.org/
National Children’s Cancer Society	www.thenccs.org
Help HOPE Live	https://helphopelive.org/
Chai Lifeline	www.chailifeline.org
The National Children’s Cancer Society	www.thenccs.org

Emergency Assistance

Organizations Name	Organizations Website Link
Rainbow Foundation	https://www.rainbowfoundation.org.hk/eng/index.html
American Red Cross Association	www.redcross.org

Insurance Help

Organizations Name	Organizations Website Link
Patient Advocate Foundation	www.patientadvocate.org
Insure Kids Now	http://insurekidsnow.gov/
HealthCare.gov	www.healthcare.gov

Pharmaceutical Assistance & Discount Programs

Organizations Name	Organizations Website Link
Rx Hope	www.rxhope.com
Partnership for Prescription Assistance	www.pparx.org
Needy Meds	www.needymeds.org
SCBN Prescription Advocacy	http://www.scbn.org
Pharmaceutical Assistance to the Aged and Disabled (PAAD)	https://nj.gov/humanservices/doas/services/l-p/paad/

Scholarships for DACA and Undocumented Immigrant students

Organizations Name	Organizations Website Link
TheDream.us	www.thedream.us
Bold.org	www.bold.org
Adelante Scholarships	www.adelantefund.org
chcinextopp	www.chcinextopp.net
FastWeb	www.fastweb.com
Golden Door Scholars	www.goldendoorscholars.org
LAEF Scholarships	www.laef.org
My Undocumented Life	mydocumentedlife.org
Esperanza education fund	www.esperanzafund.org
LULAC National Scholarship fund	www.lnesc.org

Camps, Recreation and Family Retreats

Organizations Name	Organizations Website Link
Deliver the Dream	www.deliverthedream.org
Camp Sunshine & Camp Snowflake of New Jersey	www.sunshine-snowflake.org
Camp Boggy Creek	http://www.boggycreek.org/
Camp Simcha	www.campsimcha.org
Camp Sunshine	www.campsunshine.org
Summit Camp	https://summitcamp.com/
Camp Good Days & Special Times	www.campgooddays.org
Camp Mak-A-Dream	www.campdream.org
Double H Ranch	www.doublehranch.org

Advocacy

Organizations Name	Organizations Website Link
Advocates for Children of New Jersey	www.acnj.org
Wrights Law Advocacy Site	www.wrightslaw.com
Parent Advocacy Collation for Educational Rights	www.pacer.org
Statewide Parent Advocacy Network-SPAN	www.spanadvocacy.org
Genetic Alliance	www.geneticalliance.org
National Coalition for Cancer Survivorship	www.canceradvocacy.org

Special Wishes

Organizations Name	Organizations Website Link
Kidd’s Kid’s and The Glamor Squad	https://www.kiddskids.org/
Jason’s Dreams for Kid’s	www.jasonsdreamsforkids.com
Hunt of A Lifetime	www.huntofalifetime.org
The Clayton Dabney Foundation	www.claytondabney.org
Make-A-Wish Foundation	www.wish.org
Cherished Creations	https://cherishedcreations.org/
The Marty Lyons Foundation	https://martylyonsfoundation.org/

Government Resources

Organizations Name	Organizations Website Link
The New Jersey Commission for the Blind and Visually Impaired	http://www.state.nj.us/humanservices/cbvi/home/index.html
U.S. Department of Mental Health & Human Services	www.mentalhealth.gov
SAM.gov Assistance Listings	https://sam.gov/content/assistance-listings
The United States Social Security Administration	www.ssa.gov
Medicaid	www.medicaid.gov
PubMed	www.pubmed.gov
US Department of Health & Human Services	www.hhs.gov
N. J. Div. of Disability Services	www.state.nj.us/humanservices/dds
HRSA Maternal & Child Health	http://mchb.hrsa.gov
US National Library of Medicine	http://www.nlm.nih.gov
National Institutes of Health	https://www.nih.gov/
National Institute of Neurological Disorders	https://www.ninds.nih.gov/
Centers for Disease Control and Prevention	http://www.cdc.gov
United States Department of Veteran’s Affairs	http://www.va.gov/